United Kingdom (UK) Patient Preference Study of Somatuline Autogel and Treatment Administration Setting

Patient preferences of treatment administration setting (homecare or hospital)

Time frame · Baseline

Survey responses of patient experience of injections at home and compared to responses of patient experience of injections when given in hospital

Demographic characteristics of enrolled patients with GEP-NETs

Time frame · Baseline

Age (years); Gender (male, female); Current employment status: full time, part time, unemployed, retired, student, homemaker, unpaid carer)

Clinical characteristics of enrolled patients with GEP-NETs

Time frame · Baseline

Disease duration; Duration of homecare administration of lanreotide; Duration of hospital administration of lanreotide

Patient-reported impact on healthcare resource use

Time frame · Baseline

Assessed using bespoke questionnaire a patient-reported opinion on how homecare administration compares to hospital administration (i.e. much worse / somewhat worse / about the same / somewhat better / much better) for the number of administration setting related aspects described in the protocol, as well as choosing the most applicable answer(s) where applicable.

Patient-reported impact on wider societal costs

Time frame · Baseline

Assessed using bespoke questionnaire a patient-reported opinion on how homecare administration compares to hospital administration (i.e. much worse / somewhat worse / about the same / somewhat better / much better) for the number of administration setting related aspects described in the protocol, as well as choosing the most applicable answer(s) where applicable.

Patient-reported work productivity

Time frame · Baseline

Assessed using the Work Productivity and Activity Impairment Questionnaire: General Health (WPAI:GH) and bespoke questionaire

Description of patient-reported HRQoL

Time frame · Baseline

Assessed using bespoke questionnaire a patient-reported opinion on how homecare administration compares to hospital administration (i.e. much worse / somewhat worse / about the same / somewhat better / much better) for the number of administration setting related aspects described in the protocol, as well as choosing the most applicable answer(s) where applicable.)

Description of patient experience of taking lanreotide in the hospital and homecare settings and reported benefits/limitations of each setting;

Time frame · 1 month

Assessed using qualitative interviews which will be conducted over the telephone by an experienced qualitative interviewer. During the interview semi-structured interview guide will be used, based on guidance and feedback from a clinical expert (specialist nurse) and patient expert(s). The interviews will be primarily guided by the questions in the discussion guide; however, participants will be free to direct the conversation to topics they feel are relevant to their experience.

Description of the impact of the homecare and hospital settings on HRQoL, work productivity, emotional and physical health

Time frame · 1 month

Assessed using qualitative interviews which will be conducted over the telephone by an experienced qualitative interviewer. During the interview semi-structured interview guide will be used, based on guidance and feedback from a clinical expert (specialist nurse) and patient expert(s). The interviews will be primarily guided by the questions in the discussion guide; however, participants will be free to direct the conversation to topics they feel are relevant to their experience.